Genetic Testing From a Mother's Perspective

Some people get so upset with the labels...for me, they always brought a sense of comfort in knowing I now had a "ticket" for resources and an "x" on the map to find my tribe. It really has been nothing more than that for us. Separating the child from the label has always been easy. As each new label came along, I always had this mantra that would play in my head, “He is the same kid now as he was a moment ago, before this new word was used to define some aspect of him.”

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Christian Guardino's Story

It wasn’t until he was 3 or 4 months old that his mother, Beth Guardino, noticed something was off. Christian was not making eye contact and was fixating on light sources. When Christian was 6 months old, she took him to a doctor who informed her that Christian had a rare genetic vision disorder called Leber’s Congenital Amaurosis (LCA).

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Brianna Allen Comment
Top Low Vision Tech

Assistive technology and low vision devices have come a long way in the past decade, and the race to make devices better and more comprehensive is on. While there are thousands of low vision devices out there, we think there are a few front-runners that are pushing the boundaries of what is expected.

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Brianna AllenComment
Insurance and Low Vision Devices

Low vision devices somehow were glossed over when insurance companies were deciding what should be covered and what should be your responsibility to pay. This leaves many individuals and families feeling hopeless and frustrated in their search for a vision aid that is affordable and effective.  

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